IPOS 2022: WORLD CONGRESS REIMAGINING PSYCHOSOCIAL ONCOLOGY: EMBRACING VOICES FROM AROUND THE WORLD
TORONTO, CANADA • AUGUST 29 - SEPTEMBER 1, 2022
Monday, August 29 ALL TIMES ARE EDT
0830 - 1630 Distress screening with adolescents and young adults with cancer: Why, how, and what to do next
Dr. Pandora Patterson, Dr. Fiona McDonald, Dr. Norma D'Agostin, Dr. Charlene Rae
Distress has been recognised as the 6th vital sign for cancer patients; those with elevated distress may experience reduced quality of life, increased likelihood of maladaptive coping, and lower treatment adherence. These issues are particularly prevalent for adolescent and young adult (AYA) cancer patients, who have unique and complex psychosocial needs. This workshop will demonstrate the need for distress screening in AYAs with cancer and outline the latest evidence on distress prevalence, the ‘red flag’ issues that are common markers of clinical distress, and the demographic, clinical and psychosocial risk factors. Participants will also be introduced to an internationally validated tool for psychosocial screening, along with best-practice care planning and comprehensive assessment processes for AYAs with cancer. A key focus will be the use of these tools in both in-person and virtual settings, incorporating case studies to explore common presenting concerns and barriers, and guidance from experienced clinicians. The final part of the workshop will discuss the implementation of distress screening as standard care in different contexts, supporting participants to apply their new knowledge in their specific setting. This will include discussing the challenges of care planning and support provision when resources are limited.
0830 - 1630 A Framework and Staffing Formula Ratio for Hiring Health Care Professionals in Psychosocial Oncology Programming- Working Towards Achieving International Consensus
Dr. Carole R. Mayer, Marianne Arab, Kimberley Thibodeau
The purpose of this workshop is to provide participants with a framework and staffing formula for hiring health care professionals working in Psychosocial Oncology as they build their own PSO programming and/or clinical practices. The presenters will review the work undertaken by the Canadian Association of Psychosocial Oncology to establish the minimum benchmark in hiring practices for PSO programming in Canada. They will also describe and seek input from participants on 10 factors that shape the framework using the example of MSWs working in tertiary cancer centres and demonstrate how the online calculator works for this discipline. The framework is fluid and can be adapted for other disciplines. This interactive workshop will permit participants to describe, further plan and refine their own PSO programming hiring practices. A copy of the framework will be circulated with a list of questions prior to the workshop permitting participants to reflect on their own work environment to fully engage in the discussion. Input provided by participants will create synergies to continue the work across the IPOS Federations to advocate for well-resourced PSO programming infrastructures. The goal is to strive for excellence, ensuring cancer patients and families receive services that meet their needs with positive and desired outcomes.
0830 - 1200 Integrating Psychosocial Care Across the Cancer Control Continuum: What Does it Take?
Julia H. Rowland, Barry D. Bultz, Matthew Loscalzo, Luigi Grassi, Dégi L. Csaba
Since its founding, a goal of IPOS has been--and continues to be--to champion the delivery of whole person care for all persons at risk for or diagnosed with cancer globally. A key challenge to the success of this effort is ensuring that such programs and services are integral to and not simply ancillary or an afterthought to high quality cancer care. How do you get buy-in to support psychosocial programs? Who needs to be ‘at the table’ when building a program? Can you effectively address your medical colleagues’ questions around ‘what’s in it for me?’ What is and who needs data on program impact? Importantly, can lessons be learned from successful ventures in this arena? In this symposium, we will hear about comprehensive models for psychosocial care developed in the US (Loscalzo), Canada (Bultz) and Italy (Grassi) respectively. Special focus by these seasoned leaders will be given to identifying ways to identify and leverage opportunities to change the culture of care, and ensure the sustainability of the psychosocial programs launched. A final expert panel (including Rowland & Csaba) will enable participants to pose the most thorny challenges they face in bringing psychosocial care to their own backyard.
0830 - 1200 Integrative Model of Cancer Experience in Children and Teenagers through the use of Art
This interactive activity aims to show an integrative model of cancer experience in children and teenagers with cancer through art. The model includes health-improving and deteriorating factors for this age group. It employs a variety of learning modalities, such as team exercises, examples of cases, inter/intrapersonal activities, and experimentation with some art media. During the workshop, the participants will know the dimensions (cognitive, emotional, behavioral, and social) proposed in this model. They will know the basic steps to follow in an art-based assessment session using as reference an art therapy program research developed at Pediatric Specialties Hospital in Venezuela for cancer patients. This research was awarded with the Interamerican Post-graduate Research Award 2019 by the Interamerican Society of Psychology. At the same time, participants will have a close approach to different arts technics such as drawing, painting, modeling, writing a story, and collage used to evaluate the needs and the experience of disease in children and teenagers with cancer. Finally, participants will learn that art may be used as an evaluation tool that employs images to facilitate communication in the therapeutic setting, improving assessment and intervention.
0830 - 1200 The Clinical Challenge of Uncertainty – Using ACT based approaches to support our patients
Uncertainty is one of the most common clinical presentations in the oncology population, and will often manifest in anxiety or low mood. Recognising and treating uncertainty is important in all aspects of cancer care, but particularly when patients are in the survivorship phase, and conversely when living with advanced disease. In both of these time periods, uncertainty is amplified as patients face unknown outcomes and fear around the trajectory of cancer. The workshop will be clinically focused and will utilise approaches from the six domains of Acceptance and Commitment Therapy (ACT) to identify and treat uncertainty. Through the workshop participants will be able to explore strategies and techniques, as well as sharing their learnings from their own clinical practice. It is recommended that participants have some understanding of ACT. At the end of the workshop participants will be able to; • Identify clinical presentations linked to uncertainty, and strategies to help manage same. • Identify appropriate ACT strategies for the management of uncertainty, and demonstrate ways of implementation. • Identify appropriate interventions for different stages of the patient trajectory – particularly in the survivorship phase, or when patients are living with advanced disease. This will be an interactive and engaging workshop, which will encourage participants to share their clinical experiences, or examples of when they have been ‘stuck’ in working with uncertainty.
1200 - 1300 BREAK
1300 - 1630 Mindfulness as a coping strategy for cancer survivors
The workshop aims to show how Mindfulness can be used as a coping strategy to reduce stress and promote emotional wellbeing in cancer survivors. This interactive experience presents the scientific mindfulness base, considering benefits, characteristics, and evidence-based results. At the same time, this workshop includes mindfulness practices, such as breathing, meditation, and gratitude exercises to promote patient body-emotional awareness, self-compassion, and lovingkindness. Participants will also know the benefits of Mindfulness through the reports given by patients at the "Spanish Wellbeing Program" developed at the Canopy Survivorship Center in the Woodlands, United States. The results found in this last program are feelings of satisfaction and peace, reduction of anxiety and sadness, improvement of personal wellbeing, positive self-identification, an optimistic perspective, and feelings of confidence.
1300 - 1630 As the End Nears – Working with AYAs with Advanced Disease
Toni Lindsay, Ursula Sansom-Daly
Adolescent and young adult (AYA) cancer patients have unique clinical and psychological presentations. Despite improvements in treatments and outcomes for many of these patients, some be faced with advanced disease and limited life expectancy. There is evidence from clinicians which indicates their uncertainty and concerns in working with these young people and their families, particularly if clinicians are not working predominately with an AYA population. The workshop will provide a unique combination of clinical and research approaches in working with young people at end of life, with a particular focus on an adaptation of the Acceptance and Commitment Therapy (ACT) framework and interventions. Participants will be able to develop skills and techniques to adapt their existing practice to the unique experience of working with AYA patients at the end of life. The workshop will have a particular focus around communicating with young people, addressing the ‘what’ (what topics to talk about), the ‘who’ (who facilitates different conversations, and who is in the room), and the ‘when’ (the optimal time for different topics to be introduced. Within this we will focus on identifying needs and values, engagement of specific tools (such as Voicing My CHOiCESTM), ways to best include family members, and risk assessment/treatment refusal/competency. We will also explore the role of legacy and meaning-making interventions with AYAs. The workshop is aimed at clinicians who have some ACT knowledge, and who have done some work with AYAs, but do not need to be working extensively with either. Attendees should be prepared to engage in some experiential learning as well as be open to discussing novel ways of working therapeutically.
1300 - 1630 Advancing Evidence-based Integrative Oncology in the Global Cancer Care Community
Lynda Balneaves, Ting Bao, Linda Carlson, Dugald Seely
The Society for Integrative Oncology (SIO) is a multidisciplinary organization committed to advancing evidence-based integrative health care to improve the lives of people affected by cancer. This didactic and interactive workshop will introduce psychosocial oncology healthcare professionals, researchers, and patient advocates to the mission and vision of SIO, as well as to clinical guidelines, practice tools and resources, and education competencies developed by SIO members to support the global cancer care community in addressing the use, and interest in, complementary and integrative cancer therapies (e.g., meditation, yoga, acupuncture) in an evidence-based, person-centred manner. Clinical guidelines for cancer-related pain, breast cancer, lung cancer, and integrative oncology communication will be discussed in the context of real-world case studies. Practice tools and resources, such as the SIO research digest, the podcast “Integrative Oncology Talk”, and the SIO webinar series that addresses patient and clinician experiences with integrative oncology, particularly within underrepresented communities, and offers virtual complementary practices, will be introduced. To conclude, the recently published education competencies for integrative oncology will be reviewed, highlighting the knowledge and skills required to establish integrative oncology education and training program to better meet the needs of individuals living with cancer and psychosocial oncology healthcare professionals
1300 - 1630 An Art Exhibit: Illuminating our Grounded Theory about Patients’ Experiences with a Mindfulness-based Expressive Arts Group
Dr. Kendra Rieger, Dr. Thomas Hack, Miriam Duff, Dr. Christina West
Upon receiving a cancer diagnosis, life irrevocably changes and complex experiences of emotional distress often occur. There is a growing interest in holistic interventions for promoting patients’ well-being. We conducted a constructivist grounded theory study to understand how patients with cancer experience, utilize, and draw meaning from a mindfulness-based expressive arts group. During the group, participants engaged in mindfulness practices and then expressed themselves in various expressive art activities, including an art journal, an emotional spectrum sketchbook, a body outline, and a mandala. We gathered descriptions of participants’ experiences (N=32) through semi-structured interviews and art elicitation and analyzed data with grounded theory methods. The participants’ narratives about their artwork were crucial to understanding how they processed their cancer experiences through this group. To share our grounded theory study findings in an engaging and meaningful way, we will hold an art exhibit created by a multidisciplinary team. Our art exhibit incorporates photographs of the participants’ artwork and interpretive materials alongside the study findings. We are also evaluating the impact of this exhibit on attendees as there is nascent research investigating the impact of arts-based knowledge translation strategies in oncology.
1300 - 1630 Sexual and Gender Diversity in Cancer Care (SGDc): Developing Communication Skills to Foster Inclusive Cancer Care
Christian Schulz-Quach, Lauren Squires, Margo Kennedy, Samantha Scime, Jennifer Croke
The Sexual and Gender Diversity in Cancer Care (SGDc) Program at the Princess Margaret Cancer Centre was established to improve the cancer experience for 2SLGBTQIA+ patients and their chosen families while receiving safe and inclusive cancer care. Preliminary evidence gathered by our team has found that 55% of healthcare providers (HCPs) feel they lack knowledge about the health needs of 2SLGBTQIA+ patients (Jivraj & Croke, 2021). However, 92% expressed interest in obtaining targeted education to fill this gap. These findings are supported by the literature (Ussher et al., in press) and demonstrate need at a local level. Purpose: To introduce clinicians, researchers, patients and their chosen families alike to SGDc-related concepts and communication strategies to foster inclusive cancer care. Methodology: Attendees will have the opportunity to acquire further knowledge and develop communication skills in four main domains of SGDc (pronouns, gender identity, sexual orientation, and relationship diversity). The workshop will introduce attendees to the practice of recognizing and reflecting upon their own unconscious biases with the purpose of improving their communication skills when interacting with 2SLGBTQIA+ patients and chosen family through engagement with best-practice examples developed by SGDc.