Recording: CAPO Webinar Series: How can research culture adapt to more effectively engage patients and caregiver partners in the future?

Recording: How can research culture adapt to more effectively engage patients and caregiver partners in the future?

Recorded on February 11, 2025

Traditionally, health research has been slow, cumbersome, and confined to scientists. However, rapidly evolving healthcare challenges demand faster and interdisciplinary responses to urgent societal needs. As the research landscape evolves, we have seen the added expertise of patients and caregivers (family and friends) recognized. To fully benefit from their involvement, research culture needs to adapt. Join us to explore the changes needed for reshaping the future of health research to more effectively engage patients and caregiver partners.

Featuring:

Donna Rubenstein is a patient partner committed to advancing the integration of patient and community voice in all aspects of healthcare. Her views are shaped by personal experience as a patient and caregiver as well as a career working internationally. She contributes to innovative projects in health research and service delivery. Donna currently co-chairs the Patient Advisors Network (PAN), a national independent community of practice for patient/caregiver partners. PAN also serves as a partner for healthcare teams and organizations seeking to integrate the collective expertise of PAN's patient/caregiver community.

Dr. Anna M. Chudyk is an Assistant Professor in the College of Pharmacy, University of Manitoba and the host of asPERusual - a podcast for practical patient engagement. Her research career is marked by prestigious National level awards and recognitions, including a Charles Best Canada Graduate Scholarship, a Vanier Canada Graduate Scholarship, and most recently Phase 1 and 2 Patient-Oriented Research - Transition to Leadership Stream Awards, all from the Canadian Institutes of Health Research. As a patient-oriented researcher, Anna’s research focuses on patient and caregiver (i.e., family and friends) identified priorities and outcomes and engages patients and caregivers as members of the research team. Her patient-oriented research program aims to enhance multi-level capacity for patient-oriented research and translate this capacity into patient-centred healthcare redesign.

Alies Maybee is a patient partner collaborating in many aspects of healthcare including on research projects and areas of service delivery and policy. She looks for new ways to involve patient/caregiver partners in health systems which led to co-initiating EMPaCT, a community table of people with diverse lived experiences focused on health equity. Alies is also a co-founder and co-chair of the Patient Advisors Network (PAN), a national community of patient/caregiver partners created in part to support its members in building their knowledge and skills.

Access the recording:

• FREE to CAPO Members
• FREE to Non-Member Patients/Caregivers
  
• $15 to Non-Members

Details for accessing the recording will be provided in your confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply