Your Email Address
[email protected]

Your Name
Sylvie Lambert

Title of the project
Evaluation of a dyadic, Tailored, wEb-based, psychosocial and physical activity self-Management PrOgram.

Amount (in CAD$)
434000

 

Grant Recipient 1

Name
Lambert, S.

Affiliation
St. Mary's Research Centre / McGill University - Ingram School of Nursing

Are they a CAPO Member?
Yes

Picture
Sylvie_Lambert1.jpg

 

Grant Recipient 2

Name
Duncan, L.

 

Grant Recipient 3

Name
Clayberg, K.

Affiliation
St. Mary's Research Centre

Are they a CAPO Member?
No

 

Grant Recipient 4

Name
Katz, A.

Are you a current member of CAPO?
Yes

What is the name of your funding agency?
Prostate Cancer Canada 

What was the duration of your grant?
5

What was the amount awarded for the grant?
434000

Description
This project focuses on the Evaluation of a dyadic, Tailored, wEb-based, psychosocial and physical activity self-Management PrOgram (called TEMPO) for caregivers of prostate cancer survivors.

Your Email Address
[email protected]

Your Name
Sylvie Lambert

Title of the project
e-IMPAQC: Evaluation of a mobile application for the realtime electronic assessment of cancer patient- and informal caregiver-reported outcomes to improve symptom burden and quality of life in Quebec

Amount (in CAD$)
1500000

 

Grant Recipient 1

Name
Lambert, S.D.

Affiliation
St, Mary's Research Centre / McGill University - Ingram School of Nursing

Are they a CAPO Member?
Yes

Picture
Sylvie_Lambert1.jpg

 

Grant Recipient 2

Name
Faria, R.

Affiliation
St. Mary's Hospital Center

Are they a CAPO Member?
No

Picture
Rosana_Faria.jpg

 

Grant Recipient 3

Name
Rosberger, Z.

Affiliation
Jewish General Hospital / McGill University

Are they a CAPO Member?
No

 

Grant Recipient 4

Name
McCusker, J.

Affiliation
St. Mary's Research Centre

Are they a CAPO Member?
Yes

Picture
Jane_McCusker.png

Are you a current member of CAPO?
Yes

What is the name of your funding agency?
Canadian Partner Against Cancer

What was the duration of your grant?
5

What was the amount awarded for the grant?
1500000

Description
Patients undergoing cancer treatment experience multiple symptoms, many of which remain unrecognized and undertreated.1 To address this problem, systematic and standardized collection of patient-reported outcomes (PROs) have become a cornerstone of modern patient-centered care. PROs, collected using questionnaires provided to patients to self-report symptoms, capture patients’ perspectives about how the cancer and its treatments are impacting on their general well-being2 and provide clinicians the information they need to improve symptom detection and management.3 The availability of standardized PRO data has a cascade of effects, including a) enhanced patientclinician communication; b) improved clinician awareness of patients’ symptoms; c) greater patient and clinician satisfaction; d) improved patient symptom management; and ultimately, e) improved patient outcomes.4 Although, routine assessment of PROs has been found to have strong, consistent, positive effects on key processes of care (e.g., patient-clinician communication),4 evidence for the effects on symptom severity and patient outcomes (e.g., anxiety, quality of life) remain equivocal. To date, 24 trials have been conducted examining the effectiveness of PRO programs; the results of which have identified components that are now considered standard, including completing PRO questionnaires at pre-determined intervals and sending feedback reports to clinicians.4 These trials have also identified a number of patient-centered components that might improve effectiveness, including a) empowering patients to self-manage symptoms by providing them with a summary of their PRO data and personalized educational resources, b) using mobile technology to tailor PRO assessments to patients’ treatment, and c) including patient’s primary support: their informal caregivers. No trial to date has examined the effectiveness of integrating these patientand caregiver-centered strategies into a PRO program. The PRO program developed by our team integrates all of these innovations, and our goal is to evaluate their effects on the quality of life (QOL) of patients with cancer in Quebec and their informal caregivers. Improving the effectiveness of PRO programs in oncology is a priority both nationally and internationally;3, 5 this study will position Quebec as a world leader in this field and create unique data-banking opportunities for future hypothesis-generating research.

Your Email Address
[email protected]

Your Name
Sheila Garland

Title of the project
A Randomized Controlled Trial of Online Cognitive Behaviour Therapy for Insomnia (CBT-I) and Perceived Cognitive Impairment (PCI) in Cancer Survivors 

Amount (in CAD$)
493424

 

Grant Recipient 1

Name
Sheila Garland

Affiliation
Memorial University

Are they a CAPO Member?
Yes

 

Grant Recipient 2

Name
Josée Savard

Affiliation
Université Laval

Are they a CAPO Member?
Yes

 

Grant Recipient 3

Name
Joshua Rash

Affiliation
Memorial University

Are they a CAPO Member?
No

Add another grant recipient?
Yes

 

Grant Recipient 4

Name
Melanie Seal

Affiliation
Memorial University

Are they a CAPO Member?
No

Are you a current member of CAPO?
Yes

What is the name of your funding agency?
Canadian Institutes of Health Research

What was the duration of your grant?
4 years

What was the amount awarded for the grant?
493424

 

Description
For cancer survivors, one of the biggest barriers to getting back to "normal" is perceived cognitive impairment (PCI). Approximately 75% of cancer patients have difficulty remembering things, concentrating, and paying attention after completing cancer treatments. No one agrees on the best way of treating PCI. Insomnia is also an extremely common side effect of cancer and can increase cognitive impairments. Cognitive Behaviour Therapy for Insomnia (CBT-I) is the recommended treatment for insomnia in cancer survivors but access it limited. Our research suggests that CBT-I may also improve PCI but we need to investigate this question with better measures of cognitive abilities and sleep.

We will recruit 135 people with insomnia and cognitive complaints who have completed cancer treatment at least 12 months prior to the study. Participants will be randomly assigned to receive immediate treatment with online CBT-I or treatment after an 8-week waiting period. We want to determine whether treating insomnia with CBT-I can also improve PCI. For this, we will measure changes in cognitive abilities and sleep in a few ways. Patients will report on their own perception of their cognitive abilities. We will also ask participants to remember lists of words and follow instructions. Sleep will be assessed using sleep diaries and actigraphy, a type of "wristwatch" that can detect sleep based on whether or not a person is moving. We will also measure fatigue, anxiety, and depression, as we know these can also impact sleep and cognition.

This study will take place in Newfoundland and Labrador which has the highest incidence rate for cancer in Canada. The relative survival rate for cancer is better than ever before, meaning that more people will be living as cancer survivors and managing the long term side effects of the disease and its treatment. This research will expand currently available treatment options in order to address two of the most problematic consequences of cancer.